My child has been diagnosed with low muscle tone. What does this mean?

Who gets a diagnosis of low muscle tone?

 

An infant or  child will get a diagnosis of low muscle tone when:

  • The muscles  appear to be less firm than usual
  • The child appears to be floppy and to have loose joints
  • The child appears to be less alert and have poor posture and attention

For a more technical discussion please see webmanual.skillsforaction.com/low-muscle-tone

New Feb 2013 

Creating Action Spaces 

The difficulties experienced by children with a diagnosis of low muscle tone

  • May be late learning to sit and walk - but not always
  • Have trouble sitting erect and working at a table - tend to sit with back rounded, may lean on one hand when drawing and writing
    Have difficulty sitting still, tend to fidget, not complete school tasks
  • May tire very quickly, not like walking far, have trouble going up stairs
  • May be good at games that involve short bursts of running,  but have difficulty with posture in sitting, drawing and handwriting - these tasks require sustained activity in the postural muscles
  • Sit between legs on floor (w-sitting), do not like cross legged sitting
  • Appear to have poor attention span or concentration, give up easily
  • Cannot hang on the monkey bars, do not like climbing on the jungle gym, are fearful
developmental Gym_0_0.jpg

What causes these difficulties?

The most common cause of these difficulties is joint hypermobility  associated with a cautious temperament.

In individuals with hypermobile joints (loose or lax joints) the connective tissue structures that hold the body together have more give (are more easily stretched) than usual. This means that the muscles must work harder than usual to hold the keep a good posture and move. 

Children with a cautious temperament  are often quite anxious  which leads to avoidance of tasks that require effort and a tendency to give up very quickly. This in turn leads to low levels of activity, weakness and poor endurance. 

Read more here about the link between joint hypermobility and low tone 

 

 

Recognising joint hypermobility

 

   
finger extension_0.jpg wrist flexion_1.jpg

 

Infants
with low muscle tone
Fingers bend back to 900 Thumb can be brought close to the forearm    
Elbows and knees bend backwards

hypermobile standing with elbows_0.jpg

   

What is low muscle tone?

 

The term muscle tone refers to two aspects of muscles structure and function.

  1. The inherent stiffness of a muscle - its resistance to being stretched and firmness when palpated (squeezed).
  2. A muscle's (or groups of muscles') readiness for action - the muscle's responsiveness to signals from the brain and to sensory feedback.

    The term low muscle tone is used when the muscles' stiffness is less than usual (ie it is low) and the readiness for action is also low (muscles respond slowly).

How is the muscle's firmness (tone) tested?

 

The clinician makes a judgment about a muscles firmness and inherent stiffness by:

  • Squeezing the muscle to feel the resistance to compression
  • Lifting up and moving the limbs and feeling the resistance to this movement  

What determines a muscle's firmness

 

The firmness of a muscle is determined by its inherent stiffness and this in turn depends on the stiffness in the connective tissue sheaths that encase each muscle fibre, hold the bundles of muscle fibers together and connects the muscle to the tendons.

In children with hypermobile joints  the connective tissue is less stiff than usual. (It has more give and is more easily stretched.)

This tendency for less stiff connective tissue which results in hypermobile (lax)  muscles and joints is genetically determined. About 10-15% of people are hypermobile.

The other very important structure that that determines a muscle's firmness and resistance to being stretched is the giant molecule titin. 

Titin is a very large elastic molecule found within the muscle cell.  The size and strength of the titin molecules is determined by the  amount of work a muscle is made to do on a regular basis. Strong muscles have larger and stiffer titin molecules - and this makes the muscle firmer and stiffer.  The muscle has better tone.

Generally speaking, strong muscles are firmer and have better tone.

Muscle tone, alertness and readiness for action

 

The term muscle tone is also used to describe the a muscle's readiness for action.  This is set by the child's alertness,  general level of arousal and readiness for action.

The brain primes the muscles for action by sending signals to the muscles’ sensory receptors.  In effect the sensory receptors become more alert and provide more effective sensory feedback and respond more quickly. This allows for the rapid adjustments needed for maintaining balance and postural stability.

When a child is alert and engaged,  the muscles are primed for action.  The muscle tone is good and the posture is erect.

When a child is over-aroused, the muscles may become twitchy and overactive.  This makes the child less able to focus attention on a task.

If a child is anxious, finds a task difficult and is having trouble focusing his attention, the normal alertness for action signals do not reach the muscles. They become less responsive and provide less sensory feedback.  Muscle tone is lowered and the child's posture becomes less erect and alert.

 

Can low muscle tone (muscle laxity) be "cured"

 

The general stiffness of a child's muscles - which is what provides the muscles' tone, depends on two factors:

The stiffness in the connective tissue - this is genetically determines (it is in the DNA) and cannot be changed.  (See  Joint Hypermobility Syndrome)

The size of the titin molecules in the muscle cells. Stronger muscles have larger titin molecules. Stronger muscles have better tone.

Muscle and joint laxity cannot be "cured". But the movement difficulties  associated with muscle and joint laxity can be improved by  training to improve muscle strength, flexibility, endurance, coordination and attention. (TAMSKA).  See Help for low muscle tone

Underlying causes of low muscle tone (muscle laxity) and poor alertness for action

Joint hypermobility syndrome – The connective tissue is more compliant than usual, leading to joint and muscle laxity and weak muscles

  • Intervention:  Exercises to improve strength and endurance and train posture and coordination

A cautious nature – The child avoids  tasks and activities that are difficult or require physical effort, which affects engagement and readiness for action.

  • Intervention: providing the child with tasks that challenge them in such a way that they become less avoidant and learn courage

Muscle weakness – as a result of lack adequate opportunities for engagement in activities that load the muscles in a way that leads to increased muscle strength

  • Intervention:   an exercise training programme that provides the child with appropriate challenges to learn new skills and engage in challenging tasks that load the muscles in a way that increases muscle strength.

Developmental coordination disorder where a child has difficulty learning new skills through experience and exploring ways to perform new and challenging tasks, leading to avoidance and lack of experience.

Intervention: a movement training programme that provides the child with opportunities for learning new skills in a structured way.

Autism - when it is associated with joint hypermobility and and associated laxity in muscles.

Down syndrome where joint hypermobility and muscle laxity is a defining feature.

Creating Action Spaces 

Today you have joined the 150 people who will  land on the this page every day looking for information and help because their children have been given a diagnosis of “low muscle tone”. 
 
You will have read how children who have movement difficulties, including those with a “low muscle tone” diagnosis need lots of opportunities to improve their motor skills, strengthen their muscles, increase endurance and generally engage in movement activities that challenge them mentally and physically. 
 
You may or may not go on to take a look at the Fit for Action pages which provide ideas for specific activities to increase strength, fitness and endurance.
 
All this information can be a little overwhelming – and in any case how do you fit one more thing into a busy day or get your very reluctant child to engage in exercises. 
 
So for the parents who are feeling overwhelmed and want ideas they can implement easily , I have just created a new corner on this website  called Creating Action Spaces.  Take a look 
 

Help for low muscle tone

 

The only way to improve muscle tone is to strengthen the muscles, increase endurance and improve the child's levels of readiness for action.

This can be achieved by providing the infant or child with many different opportunities for  engaging with physical and mental action that require effort and challenge the child.

More about babies with joint hypermobility and associated low muscle tone
The TAMSKA 20-minutes-a-day challenge 
How you can help your child - starting today
​Fit for action: An Online Guide for Parents and Teachers 

 

Comments

Anonymous
My brother is suffering from

My brother is suffering from hyper tonia he has a chest problem. He is only 14 months old he does not walk.and also not able to sit properly .can you please tell me what should we do so that he is able to walk .but he plays with toys and carry themm in hand and is also able to speak.

Pam
User offline. Last seen 1 day 2 hours ago. Offline
Joined: 10/01/2008
Cannot give specific advice

Hello 

Thank you for your question. I cannot give advice on individual cases - for many different reasons. 

I hope you have access to a developmental assessment from a pediatrician and physiotherapist. I do understand that this is not always available in some parts of the world.

In the meantime, encourage you brother to be active - play with him on the floor, encourage him to crawl a lot, up and down, over different surfaces. This will increase his fitness and strength. Let him do things for himself - more floor play and less being picked up maybe. This is good advice for all children. 

Also, children who have low tone often only walk at about 18 months - this is OK.  

Pam 

Pam
User offline. Last seen 1 day 2 hours ago. Offline
Joined: 10/01/2008
Cannot give specific advice

Hello 

Thank you for your question. I cannot give advice on individual cases - for many different reasons. 

I hope you have access to a developmental assessment from a pediatrician and physiotherapist. I do understand that this is not always available in some parts of the world.

In the meantime, encourage you brother to be active - play with him on the floor, encourage him to crawl a lot, up and down, over different surfaces. This will increase his fitness and strength. Let him do things for himself - more floor play and less being picked up maybe. This is good advice for all children. 

Also, children who have low tone often only walk at about 18 months - this is OK.  

Pam 

Anonymous
3year old low tone

A few days ago we were told our 3 year old has low tone in his arms. First we were told he had hyper mobility by phiso then OT & Physio assessed him and said low tone. He has a vet floppy walk with his arms.
He is speech language & socially delayed by 12mths & under the autisum clinic for possible Aspergers diagnosis in next 2 years.
He is super hyper always fidgeting and 100mile per hour constantly
We have a diagnosied aspergers son age 8 hyper mobility.
What exercise should we be doing with our 3 yr old ?
How can we help him with this low tone.
Can the low tone be affecting his Speech ?
He has a underdeveloped chew also and chokes often.
Many thanks

Pam
User offline. Last seen 1 day 2 hours ago. Offline
Joined: 10/01/2008
Hypermobility and exercise

Hello 

Thank you for your question.

As you may understand I cannot make recommendations for individual children. 

A general recommendation however is to give your son as many opportunities for being physically active as you can - encourage him on outdoor play equipment, go for walks in the park and woods or countryside,  let him ride on a scooter etc.

And follow the advice of the therapists at the ASD clinic regarding language and social development. They can also advise you on dealing with his hyperactivity. 

It is also very important to link up with a support group in your area - each country has a national body. In the UK it is the National Autistic Society http://www.autism.org.uk/ . 

You can also google  autism support group and your town name and will possibly find a local group. 

Pam 

 

Anonymous
Question on hypotonia...low muscle ton
My daughter just turned 19 months old and was just found ineligible for services through Early Intervention. She is very intelligent, but her speech, communication is very delayed. She can copy/mimic actions, but not sounds or words. She has been sitting in the W position since she has been able to sit. We were told about that when the evaluators came out to meet with our daughter. I have W's all over my house to make sure that we have her sit in any other position? Is there a best position for her. She was never happy with tummy time, was a delayed crawler, walker, and is very cautious. Not super-delayed within reason, but it all makes sense. Her balance is off as well, we just thought she was clumsy. I wish she had been recommended for PT. They suggested we take her out on the uneven grass to run, have her climb up the stairs while holding up on the sides, any climbing would be good. What else can we do for her muscle tone and does this effect her speech, it has too. Receptively, she is so bright. I really thought that she was on the spectrum of autism because she has a lot of the symptoms, but has good eye contact if you ask her to look at you, and can be social with older children and with adults. She responds to her name and looks for praise. She has horrible tantrums because she is so easily frustrated when she can't do something on the first try. She throws things and will bang her head. We just thought she was very type A personality. Disciplining her is going to be difficult because she laughs and shows signs of oppositional behavior, however I think she fits the Behavioural Inhibition symptoms. We will pay for PT if it will help her. I have been buying whatever I can find to help her with muscle tone. Any suggestions and will this improve? Since her may not have a severe case if there is such a thing, can she recover if we are aggressive? She did have/does have sensory issues, but is getting better with our help I believe. When she is socially out at her play class 1-2x a week, she is very independent, is reluctant to try new things and is VERY CAUTIOUS. Please help! I want to find someone that can help us. I feel like I have been the one suggesting all of this to the doctor and pushing because my gut tells me that something is wrong. She is our first child and it is upsetting because you trust that professionals would be able to direct and tell you. I think that it is a good thing that I am a teacher because I may not have been looking into a lot of these things otherwise.
Pam
User offline. Last seen 1 day 2 hours ago. Offline
Joined: 10/01/2008
Hello I have two questions.

Hello

I have two questions. The first is,  are the poor motor skills due to generalised joint hypermobility?  Low muscle tone is not a diagnosis - just a label. If she is clumsy - there is a reason for this. 

Interestingly joint hypermobility is often associated with a very cautious nature - which goes with poor tolerance for putting effort into things, and poor self regulation and hence the temper tantrums. 

The second question is has your daughter had a speech and language assessment? At this stage that would be my main concern. If a child is not saying words by 18 months, speech therapy intervention is really important. 

She will be getting very, very  frustrated at not being able to communicate. If it has not already been started, she needs to get going with signing - and this will often prompt the speech production.

The other thing that comes to mind is speech dyspraxia. This is a developmental disorder that affects the child's ability to form speech sound and words - the motor part of speaking is affected , it can be seen as clumsiness of the speech movement apparatus.  

Speech dyspraxia may be associated with developmental coordination disorder - which is a specific disorder of motor learning - children do not learn new skills in the usual easy way - they often need very specific teaching. There is not specific assessment for DCD in children younger than 4 years. 

I would not worry too much about the W-sitting. Give your daughter lots of opportunities for walking, clambering, perhaps create some obstacle courses around the house, play running games, visit the park and encourage climbing on the climbing frames. Increase her fitness for walking and running. Play lots of jumping games. Get her a scooter bike. 

I think any speech therapist and developmental psychologist would agree with me that the most important thing to concentrate on at this stage is improving communication - and if your daughter has not had a full speech and language assessment,  go for this before anything else. Once her frustration levels are better, then you can start to engage her in activities to improve her motor abilities and improve her muscle strength. 

Please keep us posted. 

Pam 

Anonymous
Thank you!

Thank you for such a quick response. I am concerned because there is so much to read, research and you don't want to think that your daughter has everything, but I am trying to figure it all out. I feel very ignorant on these issues, it is all new to me. I am a second grade teacher, and I have not heard of many of these terms. I bet many children out there are misdiagnosed and being mistreated.

I have to be honest....she is only 18 months old and since I am a new mom and never did many of the these things/tests with the children I babysat growing up with or our nieces/nephews...how would I test her for joint hyper mobility? I am not sure about the DCD either. My head is spinning.

All I know is that her speech seems very impaired at this point. Early Intervention Services through the state came out and she was evaluated for speech and a behavioralist came out as well.

She does enjoy running, will climb up on our couches, but her spacial sense I think may be challenged a bit. She bumps her head often and doesn't seem steady of her feet like I said, especially when she is tired, she falls down a lot more and almost like loses coordination if that makes sense.

We take her to a Gymboreee class usually 2x a week. There she will do a bit of climbing and now that the weather is nicer we started taking her to the park. We have a little slide in our house where she can walk a step or two and slide down and we are having her walk up the slide.

She definitely cannot jump. We have been trying to work on that for about 3 weeks now. She bends her legs. She doesn't get it. She can imitate many things that we do, but not words. She has an excellent working memory, has great problem solving skills, but if she can't get it the first time she will throw it, scream, or have a tantrum. She gets extremely agitated when hungry and has zero patience for anything.

She cannot skip or hop yet either. She has been using a few signs to communicate since she was 7 months old. She does more, milk, hungry. She also can show us what she wants/needs, but will get frustrated many times. We are constantly saying words for her to say, but she isn't really catching on. That is when the therapists told us about her W-sitting position and her core posture/low muscle tone being all connected to her delayed speech.

She was not eligible for speech or PT/OT for her low muscle tone since they said it wasn't severe.

What do you suggest that I do? Do I take my daughter to a specialist who specializes in these areas?

I know you throw around these words so easily, but they are all foreign to me. I am not sure if it was speech dyspraxia or not, but what she doesn't exhibit is the difficulty following directions and the memory. She does well with those if she wants to and is interested and successful, she will continue with a task but if not, she will move on to something else. Her tantrums are very concerning to me. I do wonder if they are connected in some way, yes it could be a lot of frustration on her part some of the time that leads to tantrums and then I wonder if other times it is just her being an 18 month old and wanting what she wants and trying to manipulate us or her grandmas (her weekly care-takers).

This has been so helpful to me, I am so grateful!

Pam
User offline. Last seen 1 day 2 hours ago. Offline
Joined: 10/01/2008
Hello againMy reason for

Hello again

My reason for responding quickly is that I get quite angry when a parent has legitimate concerns and the figures in "Authority" dismiss them as not being severe enough to warrant intervention.  

You are concerned and you need guidance. As A Gr 2 teacher you will also have great instincts - so trust your gut. 

You will find several pages on this site about joint hypermobility which will give you more information and a page on developmental coordination disorder.

http://skillsforaction.com/joint-hypermobility

http://skillsforaction.com/highly-sensitive-child

http://skillsforaction.com/dcd-and-dyspraxia

http://skillsforaction.com/node/200

Infants at 18 months are just learning to jump and cannot hop or skip. They will usually have learned to step down from a low step without holding on. 

You are also right - 18 months is bang in the middle of the terrible two's - but my experience is that frustration often increases this. At this age the chi;d's ability to self-regulate her behaviour is still limited and they need help doing this. I live with a 15 month old red head - and boy does he have a temper when he does not get his way! In fact my three grandchildren are all very reactive with strong emotional responses.  You might want to get a copy of the book Raising your Spirited Child.  

I still think that part of her frustration might be not being able to communicate - so find out as much as you can about helping her to use signing to communicate. Is she pointing?  Does she interact with you - follow your gaze, look at you for comment?  Does she enjoy sharing things with you, playing give and take games, looking for things that are hidden? 

Find out as much as you can about playing with your toddler. Provide her with lots of opportunities for practising new and challenging tasks. 

At this stage, helping your child to manage her frustration is the most important thing you can do for her future development.  

But perhaps the most important bit of advice I can give you at this stage is to:

  • Take a deep breath
  • Back of a little and allow your daughter to be who she is 
  • Take time to play quietly with her doing the things she really likes doing
  • Enjoy your daughter - just as she is. 
  • Make a list of all the great things she does

Pam 

 

 

 

 

 

 

 

 

 

Anonymous
My daughter is 5 and has been

My daughter is 5 and has been told she has low muscle tone and has no bum muscle or core stomach muscle and she is floppy and not aware of space around her. She is unable tohold pencil in the correct grip. She also has sensory issues with physio did a assessment on her that the brian doesn't respond as quickly as the norm. She has erythromelgia which is also known as sensory nerve ion channel disorder and live on zyrtec, nurofen and panadol to keep body temp in check. She is anaphalaysis to peanut and chemical senory issues as well. unable to eat diary, high salicylate foods, amine foods and her histamine is huge when she gets bitten by a mossie. Just wondering weather the low muscle tone may be leading something else that we are unaware of yet. MS? Or anyother ideas. The other weird thing she has a varicuous vein in her private part which no one has seen a child/Any thoughts.

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